Office for the National Data Guardian & Connected Health Cities Reasonable Expectations Report
The National Data Guardian, Dame Fiona Caldicott, and her office have responsibility to provide guidance to the NHS and adult social care services, the public and other stakeholders about when it is acceptable to share information about patients and service users. One potential test of what is acceptable is whether a patient would reasonably expect confidential information to be shared. The Office of the National Data Guardian and Connected Health Cities want to better understand when a patient would expect information sharing, and when they would expect information to be kept private. A citizens’ jury was chosen because the approach gives a cross-section of the public several days to understand and reach conclusions about a complicated public policy such as this. Over the three day jury, a variety of different information sharing scenarios could be tested on the public.